Inhalt des Dokuments
zur Navigation
Focus on designing health care structures and services for rare diseases (Editorial)
Autor | Schultz C, Schreyögg J, Stargardt T, Busse R |
Verlag | Health Policy 105(2-3): 107-109 |
Zusammenfassung
From a service research perspective, health care services heavily depend on the co-producer role of patients, on a strong collaboration of different professions and on the specific characteristics of the health care professional–patient service encounter. This leads to a dominance of individual solutions rather than standardized population-based care concepts such as disease management programmes. At the same time, health care services are highly emotional, risky, conducted under extreme stress, and patients – and sometimes also health care professionals – lack behavioural control. These aspects become even more important in the context of rare diseases where patients frequently carry expert knowledge, multi-professional treatment and care is essential, and particular challenges may arise from the fast progression of medical problems and lacking clinical guidelines.
...